This is a home care position - 1:1 Care (3 - 4 Months).
That’s an extremely complex and medically fragile situation. An 18-year-old with Sulfite Oxidase Deficiency, profound developmental delay, progressive dystonia (likely Dystonia), severe scoliosis (Scoliosis), and NG tube dependence is going to require continuous, high-skill caregiving—this is well beyond typical part-time or untrained support.
Essential Duties & Responsibilities:
- Airway and feeding management (NGT monitoring, aspiration risk).
- Frequent repositioning (to prevent pressure ulcers).
- Wound care (which can become medically serious quickly).
- Tone/posturing management (dystonia can cause pain and injury).
- Total assistance with all activities of daily living.
- Close monitoring for complications (infection, respiratory issues, nutrition).
Given the weight (~70 lbs) and bedridden status, there’s also a high risk of skin breakdown, contractures, and respiratory complications, so consistent, trained care is critical.
If you have this experience and looking to make a difference in someone's life with this complex medical issue - please apply now. This position is starting ASAP.